Touched by loss. Empowered through community.

Where's my handbook?

Monday, April 20, 2015
Posted By: 
Becky Lichucki

Seven years have passed. Last Friday was our wedding anniversary, last Monday my birthday and 14 days prior to that the reminder of the day my life shattered.

After seven years-I have pretty much figured out "how" to survive and even get out and get more than the basics covered on occasion. I mentally give myself a high five on those days.

Other days through a curve ball-or worse keep throwing them and paint the corners. Those days, man those days are now gratefully few and far between but those days I still fumble.

For instance-I'm researching some educational things with our son. Robert was a teacher and a music therapist. These curve balls are his wheelhouse. I have even gone so far as to pull out some of his music therapy references to find what questions I want to ask. It is hard. It is draining. I am physically alone.

I'm grateful for the friends I have that are educators and know munchkin well-and can be my sounding board. I'm grateful for his pediatrician who sees the whole picture and helps by talking to his school.

Even with all of that support around me-I still find myself wishing there was a handbook. We should have a parenting handbook they give you at hospital discharge. A widows handbook you get when your spouse is pronounced dead. An additional parent handbook for when your child is seriously ill-this one should focus on finding members of the healthcare team who won't ask you more than once why your husband isn't at the appointment.

So if anyone has found any of these handbooks-please feel free to send them my way-I was never given my copies and I am still taking things as they come!


Yes!!! We all need those!

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